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Early

An Intimate History of Premature Birth and What It Teaches Us About Being Human

ebook
1 of 1 copy available
1 of 1 copy available
A journalist uses her own dramatic experience giving birth to explore the history of neonatology and the questions raised by premature birth.
The Neonatal Intensive Care Unit (NICU) is a place made of stories—where humanity, ethics, and science collide in dramatic and deeply personal ways, as parents, physicians, and nurses grapple with sometimes unanswerable questions raised by premature birth. When does life begin? When and how should life end? And what does it mean to be human? For the first time, journalist Sarah DiGregorio explores the fascinating evolution of neonatology and its significant breakthroughs—modern medicine can now save infants at five and a half months gestation who weigh less than a pound, when only fifty years ago there were few effective treatments for premature babies. 
Weaving her own story and those of other parents and NICU clinicians with in-depth reporting, DiGregorio examines the history and future of one of the most boundary-pushing medical disciplines: how the first American NICU was set up as a sideshow on the Coney Island boardwalk; how modern advancements have allowed viability to be pushed to a mere twenty-two weeks; the political, cultural, and ethical issues that continue to arise in the face of dramatic scientific developments; and the clinicians at the front lines who are moving to new frontiers. Eye-opening and vital, Early uses premature birth as a window into our own humanity.
Praise for Early
"This book opens our minds and hearts to a world that is rarely seen with such clarity." —Jerome Groopman, MD, Recanati Professor at Harvard Medical School and author of The Anatomy of Hope
"The heart of DiGregorio's illuminating book isn't just about her family's journey; it's an expansive examination of the history and ethics of neonatology." —New York Times Book Review
"A riveting history . . . shocking, heartbreaking, and inspiring." —Jennifer Block, author of Everything Below the Waist
"Every health professional who cares for babies should read this book." —John D. Lantos, MD, pediatric bioethicist and author of Neonatal Bioethics
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    • Kirkus

      November 15, 2019
      Impelled by the premature birth of her daughter, a journalist explores how modern medicine has changed regarding the care of babies born too early and of the ethical issues that can be involved. In the prologue, DiGregorio, a Brooklyn-based freelance journalist (New York Times, Wall Street Journal, Food & Wine, etc.), describes the experience of having an extremely-low-weight child in the hospital's neonatal intensive care unit. Her focus then broadens from memoir to journalistic report. In the first chapter, she reveals how common preterm births are: 15 million annually worldwide, with the United States having "the worst rate in the industrialized world." Throughout, DiGregorio provides illuminating chronicles of her interviews with neonatal care professionals. She examines the development of incubators and then looks into the future, when we may see the use of a biobag, a sort of artificial womb that has been used successfully with premature lambs. The author also explores such issues as retinopathy and breathing problems and the techniques that doctors have adopted to handle them. In this section, she shows how the death of Jaqueline Kennedy's premature son, Patrick, led to greater funding for research into respiratory care. DiGregorio makes clear that the problems facing preterm babies can be enormous, that consequences may not be apparent for years, and that the appropriateness of treatment can be debated, and she argues for deep consideration of the question of whether to use or to withhold life support for extremely premature babies. The author then turns to the causes of prematurity. One among the many factors is stress, leading her to suggest that the higher rate of premature births among African American women is a result of living in a racist environment; a separate chapter on prematurity in Mississippi illuminates this issue. Finally, DiGregorio gives voice to grown preemies and their parents, selecting a few of them to share their stories with readers. Clear reporting that wisely urges careful decision-making by clinicians and parents alike.

      COPYRIGHT(2019) Kirkus Reviews, ALL RIGHTS RESERVED.

    • Library Journal

      December 1, 2019

      In the United States today, only 1.6 percent of babies are born before 32 weeks and fewer than one percent are born weighing less than two pounds. DiGregorio, a journalist, had been alerted by her obstetrician that her baby might be born prematurely. To prepare, DiGregorio learned all she could about premature births before Mira's birth, and continued to research the subject afterwards. The author explores the plight of premature babies in earlier years (Mira, now a lively and relatively healthy child, was born by emergency C-section almost 12 weeks early and weighing only one and a half pounds; she likely would not have survived), discusses medical advances in prenatal as well as neonatal care, and considers bioethical issues regarding extremely high-risk babies. DiGregorio also points out the importance of knowing hospital's policies regarding end-of-life care. VERDICT A well-written, carefully researched book that should be of vital interest to potential parents and their friends and families.--Marcia G. Welsh, Dartmouth Coll. Lib., Hanover, NH

      Copyright 2019 Library Journal, LLC Used with permission.

    • Publisher's Weekly

      December 2, 2019
      After giving birth at 28 weeks, food writer DiGregorio (Adventures in Slow Cooking) wanted to better understand her experience; the result is this compassionate exploration of preterm birth. Along with personal recollections of “the impossible, science-fiction smallness” of her one-pound, 13-ounce baby, DiGregorio describes the technologies, such as incubators and ventilators, that have improved survival rates for premature infants, and the improvements in care, such as a greater sensitivity to brain development, that have improved their quality of life. She also poses urgent, and as yet unresolved, questions, such as why African-American women have the highest rates of preterm birth, or at what point a preterm baby can still be considered viable—the latter question confronting parents with the agonizing choice between “active and comfort care.” Sensitively approaching the myriad practical and ethical challenges involved in caring for such fragile babies, DiGregorio gives vivid, individualized portraits of struggling parents, premature infants who developed into thriving children, and the specialists dedicated to helping them. Reassuringly emphasizing that most preterm babies develop into happy, fulfilled children, DiGregorio delivers a candid yet gentle work with appeal for prospective parents and anyone interested in “what premature birth teach us about being human.”

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